|
 |
SIDS: Reducing The Risk As featured in TheWashington
Post and on NBC television,
the video SIDS: Reducing The Risk brings together SIDS policy makers, scientists
and physicians in a unique 27 minute educational documentary. Risk reduction education is
currently our most powerful weapon in the war on SIDS. This video is a wonderful tool to
bring you up-to-date on all the current known risk factors for SIDS.
Support Our Work Here!
Mention the SIDS Network when ordering your copy of SIDS: Reducing
The Risk and ChildSecure will donate $5.00
from your purchase to the SIDS Network.
Click here for ordering
information.
|
Name: Jerianne and Larry
Mortenson
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-31 21:16:00
Comments: We lost our beautiful and healthy baby girl Marissa on August 17,1995. We
are willing to talk to anyone regarding sids. |
Name: Eric Cline
Website: The Grief Recovery Institute
Referred by: Just Surfed On In!
From:
Time: 1996-07-31 20:36:00
Comments: In the United States 7906 Santamonica Blvd. #204, Los Angeles CA 90046 In
Canada 284 Water Street North, Cambridge, Ontario N1R 3C4 |
Name: Paula Barone
Website:
Referred by: Advertisment/Brochure
From:
Time: 1996-07-31 19:43:00
Comments: I live in Ventura,CA. My son Benjamin died 2/8/90. |
Name: Melody Foote
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-31 15:46:00
Comments: |
Name: Marie
Website:
Referred by: Netscape
From:
Time: 1996-07-31 15:37:00
Comments: I am doing research on the possible connection on SIDS and DPT vaccine.
Anyone interested in talking with me about this can email me or write to me at 2712 94th
ave e, Edgewood Wa 98371 |
Name: Radford
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-31 11:26:00
Comments: |
Name: Tim Mullings
Website:
Referred by: Net Search
From:
Time: 1996-07-31 05:57:00
Comments: Hi, I'm British and have just lost my beautiful baby son James (aged 2
weeks). I have a desire to find out more and am so glad to have stumbled across your site.
Tim Mullings |
Name: Chaoyang Li
Website:
Referred by: Netscape
From:
Time: 1996-07-31 04:15:00
Comments: I am very interested in the research of this topic. |
Name: Andee Dunn
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-31 03:48:00
Comments: So many people have told me about this site and the infanlos list...I
just had to make the time to visit! VERY IMPRESSIVE!!! Personally, I've had many losses,
and close calls as well. In nine pregnancies, with four being multiples (twins 3 times and
then quads), only six children are left for me to raise. One of my daughters, a surviving
twin, was also a *near-miss* SIDS baby...and was on a monitor until 15 months of age! My
singleton survivors did well (as far as monitors, apneas, bradys, etc) and then my three
quads all needed monitors, but only until 6 to 8 months of age. We have three children
affected by an *as yet unknown* dis- order resulting in (among other things) developmental
delays... and there's a possible link to that and the losses of some of the other
children. Geneticists and other specialists are looking into that. In the meantime, life
goes on! Part of that involves me being the list administrator for LostAngels, an email
list for those that have experienced loss within their multiples (pregnancy, birth,
infancy, and onward)... the only criteria is that the set of twins, triplets, quads,
quints, etc, is no longer a complete set. Some have lost all of the set. Some are
surviving twins themselves (tho the focus is most often on those that have lost children).
I've suffered all these types of losses. I came to this site to be of help to those of you
that may be looking for something that relates to loss in multiples, or near-miss SIDS, or
repeated pregnancy losses. My husband and I have been down some difficult roads with all
of these... AND WE HAVE SURVIVED...and live to tell about! :) If you have any questions or
would like to *talk* I'm at nightowl@centuryinter.net anytime! (sorry so long) Andee
MOST-MOM to Bryana 14, CJ 11, Allyssa 8, & Mackenzie, Rebecca & Jessica all 4!
From Sparta, WI USA |
Name: Raquel and Mike
Dunshea
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-30 23:43:00
Comments: We lost our son Tyson david on june 5th 1996. He was 25 days old he was
our third child. I would love to hear from other sids parents,please Email me at
dunine@lisp.com.au We live in Katoomba in Australia. |
Name: B. Proksha
Website:
Referred by: NewsGroups
From:
Time: 1996-07-30 22:17:00
Comments: So. Illinois... |
Name: Mary Davila Cain
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-30 16:01:00
Comments: |
Name: Keri Solorio
Website:
Referred by: Netscape
From:
Time: 1996-07-30 14:10:00
Comments: I would like to tell you my story. You can read it at Life After SIDS |
Name: Sidney Simoes
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-30 13:29:00
Comments: Keep the good work. |
Name: Mitchell T.
Berenson
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-30 13:18:00
Comments: doing research about SIDS and socio-economic status. Am also interested
interested in the rights of infants. |
Name: Michelle Harms
Website:
Referred by: Net Search
From:
Time: 1996-07-30 11:48:00
Comments: |
Name: Barry Brokaw
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-25 16:15:00
Comments: Just thought I'd check in and see what you guys were up to today. Wait
until tomorrow when the Flemming British smoking study gets reported in the major
newspapers. All of us non-smoking SIDS parents will delight in this one! |
Name: Patricia Baig
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-25 13:59:00
Comments: Annapolis,Md. Worked with SIDS Research 1978-1980@University of
Md.Medical Center Baltimore,Md.Three Children on apnea monitors. |
Name: Francis
Simons
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-25 13:42:00
Comments: I am studying to be a midwife.To midwives the loss of a child through
SIDS or loss of child during pregnancy is a hard, difficult experience to deal with. I
would like to hear of people with these experiences, so as to be better prepared in my
professional life.It would mean a lot to me if through these experiences I would be better
prepared to to help people with this. |
Name: Cathy Rosenthal
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-25 12:59:00
Comments: |
Name: Wesley and Shanan
Stewart
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-25 11:44:00
Comments: 7 Sunset dr. Hutchinson, Ks. 67502 We lost our son Wiley on May 2nd 96 I
have sent in a poem and wasn't sure if I had signed this before |
Name: Christopher
& Therese Foley
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-25 11:19:00
Comments: Chicago, Ill. We lost our son, Colin Christopher Foley on January 5,
1993. He was 88 days old and died while sleeping at the babysitters house. Everyday I
think of him and what he would look and sound like today. It does get better with time,
but I'd give anything to have that time with my son. We have since had a son, Kyle, who is
2.5 years old and our daughter, Melissa, is 7.5 years old and she still misses her little
brother very much. Thanks for this page! |
Name: Lee Tanenbaum
Website:
Referred by: Yahoo!
From:
Time: 1996-07-25 08:07:00
Comments: I work with the Georgia Division of Public Health with the SIDS
Information and Counseling Project. This is a wonderful source of information for both
families and professionals. The links to the Discussion groups are supportive and
informational. Thanks for all your efforts. Georgia families can reach us at 404-679-0531.
|
Name: Wilbert Tan
Website:
Referred by: Yahoo!
From:
Time: 1996-07-25 06:55:00
Comments: Manila, Philippines. More power to your web site. I'm very impress with
what you are doing. Keep it up. |
Name: Jo Gouldburn
Website:
Referred by: Netscape
From:
Time: 1996-07-24 20:40:00
Comments: I am from Britian where the research into this is more advanced and the
education started 5 years ago to the general public. It is now reaching Americans and
hopefully through education we can start protecting our newborn infants. I work in a small
O.B. department in Louisiana and it has taken alongt time for the nursery staff to pay
attention |
Name: Loren G Land
Website:
Referred by: Net Search
From:
Time: 1996-07-24 18:24:00
Comments: King George, Virginia I was recently involved in a SIDS death. Prior to
this event, my understanding of SIDS was very limited. My first instinct was -- go to
Internet and see what is available. I was pleasantly surprised when I found an abundant
amount of information at your web site. I was able to retrieve information that helped my
daughter-in-law cope with the death. Thank you very much for being there. Now that I know
you are there, I need some additional information. I am interested in the following
information: … Statistics by year by country (i.e., incidents per 1000). … In
countries where health care is limited or below standard, is there any information that
would indicate that children do or do not die from other causes, thereby affecting the
SIDS statistics. … In the United States. statistics by year by age. … In the
United States, statistics by year by state, area or region. … In the United States,
what are the statistics related to parents and day care providers. … In the United
States and related to the day care provider statistics, is there any correlation with an
increase of women in the workplace. … Is there any recent information related to the
sleep position as a cause. … Is there any recent information related to a common gene
composition for SIDS deaths. … It is my understanding that there is a correlation
with smoking mothers. If the mother does not smoke but other family members do, is the
correlation more than normal. … Is there any relationship to other forms of drug
abuse (e.g., alcohol, illegal drugs, prescription drugs). This thing really has my
curiosity level at its peak. If my request is too much, please let me know. Thanks, |
Name: Keri Solorio
Website:
Referred by: Netscape
From:
Time: 1996-07-24 14:36:00
Comments: KRISTOPHER ARMANDO SOLORIO 7/12/88 - 11/7/88 A million times we needed
you, A million times we cried. If love would have saved you, you never would have died.
The things we feel most deeply are the hardest things to say. Our dearest one we love you
in a very special way. To know you is to love you for both family and for friends. The
sweetness of your memory, time could never end. If we would have one lifetime wish, our
dream to come true, we pray to God with all our heart for yesterday with you. |
Name: KRISTA
BURELL
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-24 13:41:00
Comments: I LIVE IN COLUMBUS GEORGIA. MY HUSBAND AND I LOST OUR BABY GIRL KAILTYN
NICOLE AT 5 1/2 MONTHS GESTATION ON SEPTEMBER 28,1995. THIS SITE HAS BEEN WONDERFUL FOR
OUR HEALING |
Name: KRISTA
BURELL
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-24 13:40:00
Comments: I LIVE IN COLUMBUS GEORGIA. MY HUSBAND AND I LOST OUR BABY GIRL KAILTYN
NICOLE AT 5 1/2 MONTHS GESTATION ON SEPTEMBER 28,1995. THIS SITE HAS BEEN WONDERFUL FOR
OUR HEALING |
Name: Mike Walker
Website:
Referred by: Yahoo!
From:
Time: 1996-07-24 10:36:00
Comments: wanted to see what was out here on SIDS. Im getting conflicting
information on sleeping positions -- just heard "rumor" that the Wall Street
Journal reported last week that the stomach is now the preferred. Confused with a 4 week
old. -mjw |
Name: Sean & Wendy
Johnson
Website:
Referred by: Net Search
From:
Time: 1996-07-24 09:32:00
Comments: My wife & I just lost our 3 and a half month old son. They believe it
was SIDS related, however we are still waiting for toxicology results. The autopsy
revealed nothing. At any rate, I was looking more into SIDS and came across this HP. My
wife is not doing very well and I was searching for something to offer her some sort of
comfort and maybe assistance from some support groups. Thanks for the page. |
Name: DARLENE & JAMES BUTH
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-23 18:20:00
Comments: I got this info from Joani. She is printing my story in the SIDS survival
guide II. I guess she is also sending you guys a copy of it for the internet. I lost my
son Peter James-Alan to SIDS in Oct of 1995. Today is a real hard day to deal with it's
P.J's 1st birthday. Losing my son to SIDS was not the hardest issue that i had to
overcome. I had to face the police harrassing my family for insuarance fraud. Like we took
that precious little life away for lousy money the root of all evil. I loved my son very
much and so did my husband. He was my 3rd child but my husband 2nd. Our first little boy.
We have two little girls ages 9 and 2 almost 3. I miss him a great deal. |
Name: Kevin D. Maupin, M.D.
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-23 14:37:00
Comments: |
Name: Karen Sherrill
Website:
Referred by: Net Search
From:
Time: 1996-07-23 07:24:00
Comments: Reagan Homecare 1185 West Avenue Conyers, Georgia 30207 770-483-4727
Implementing apnea monitor therapy. Compiling resource material for parents to be
distributed upon admission and to be used in conjunction with infant CPR classes. Any help
with this would be appreciated. Thank you. 770 |
Name: mrs. jessica r. adler
Website: boulder county government
Referred by: Net Search
From:
Time: 1996-07-23 02:04:00
Comments: please include me in your email list...any information would be greatly
appreciated...the work you are doing is wonderful...thank you! |
Name: mrs. jessica r. adler
Website: boulder county sherriffs department, boulder colorado
Referred by: Just Surfed On In!
From:
Time: 1996-07-23 01:12:00
Comments: i have a 3 month old son, and as a first-time parent i am very weary of
SIDS. i looked up info on SIDS and found this page. i read everything i can get my hands
on about SIDS...i guess i'm a little paranoid! |
Name: Jim Waters
Website: Ministry of Health
Referred by: Netscape
From:
Time: 1996-07-22 22:46:00
Comments: Looks like a really good source of information. Do you have any
information on the "phosphine/stilbine from microbial activity on mattresses"
theory of Dr Jim Sprott that were investigated in the UK and widely reported in the
popular news media in New Zealand? Any thoughts on their validity of interest. |
Name: shirley
kay
Website:
Referred by: Netscape
From:
Time: 1996-07-22 17:07:00
Comments: |
Name: Tom
Winterstein
Website:
Referred by: Yahoo!
From:
Time: 1996-07-22 12:39:00
Comments: My wife Angie and I had our third son William-Christopher Daniel
Winterstein stillborn on May 31, 1996 at 32 weeks. I am seeking out sites like this on the
internet to help get us through the painfull process. Thanks. |
Name: Ana Silva
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-22 06:21:00
Comments: |
Name: ross handley
Website: ansto
Referred by: Just Surfed On In!
From:
Time: 1996-07-21 22:09:00
Comments: please include me in your email info, thanks |
Name: Rick Couture
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-21 19:07:00
Comments: I am now living in Cape Cod Ma. just move form San Diego. |
Name: Shmuel Shalom
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-21 05:32:00
Comments: |
Name: Victoria Axiaq
Website:
Referred by: Netscape
From:
Time: 1996-07-20 21:55:00
Comments: I remember Joshua. |
Name: Gowarthan
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-20 16:44:00
Comments: |
Name: Mina Adjeiwah
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-19 11:53:00
Comments: I live in Toronto, Canada and I am very impressed with the incredible job
you guys have done on the education of "SIDS" Keep it up. Really enjoyed reading
the comments in the guest note book. Hope to visit again. |
Name: GINA LAWRENCE
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-19 10:09:00
Comments: I WOULD LIKE TO BE ON THE NEWS LETTER , BUT HOW???? |
Name: Caroline Blackwell
Website:
Referred by: Netscape
From:
Time: 1996-07-19 08:11:00
Comments: |
Name: Mike Pinna
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-18 13:57:00
Comments: |
Name: Eric FISCHER
Website:
Referred by: Net Search
From:
Time: 1996-07-18 12:31:00
Comments: I've lost a small angel named Quentin the 3 december 1994, he was just 3
month and 10 days old. I've then discoverd the terrible SIDS word. From now I'm trying to
gather information on this terrible thing and see reason for hope for others. Thanks for
existing. |
Name: MAndy TAubman
Website:
Referred by: Advertisment/Brochure
From:
Time: 1996-07-18 11:33:00
Comments: San Francisco Bay Area This is great. I've found it hard to find reliable
SIDS information here. I'm from Australia where there seems to be much more discussion
about it. |
Name: Joel W. Duling
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-18 10:22:00
Comments: My son just recently passed away on June 7, 1996 from SIDS. I am just
looking for information and possible support groups. |
Name: Jim and Julie
Cunanan
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-17 17:57:00
Comments: Salinas,Calif. We lost our precious daughter Christine Elizabeth on March
29,1996 six days after she was born. She was diagnosed with an enlarged heart that was
caused by a fistula that connected the coronary sinus with the coronary artery. The heart
surgeon tied off the fistula and things looked good for two days. But a clot developed at
the site of the fistula and Christine went into cardiac arrest. We are pregnant again and
we hope and pray we can bring this one home. The letters and poems have served to stir up
some emotions we thought we had gotten over. This a good thing. It helps us to remember
that life is very precious. |
Name: Walter Watkins
Website:
Referred by: Yahoo!
From:
Time: 1996-07-17 17:32:00
Comments: 82695 Dr. Carreon Blvd., Indio CA 92201 Homicide Detective |
Name: Kerry & Frank Bulson
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-17 16:37:00
Comments: Danbury, CT. We lost our beautiful daughter, Erin Elizabeth 3 years ago.
She was stillborn at 23 weeks. Two days later, our friends also lost their daughter during
delivery. We had a very traumatic subsequent pregnancy, not knowing if this baby was going
to make it. We are very proud that he is now a healthy 2 year old. "Time cannot
replace Erin, for she filled my soul as well as my body. Goodnight, sweet princess, and
flights of angels sing thee to thy rest..." |
Name: eileen roberts
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-17 16:25:00
Comments: Monroe, Ct. I had a child die of sids and I think this is great. |
Name: Pamela Parker Dungan
Website:
Referred by: Netscape
From:
Time: 1996-07-16 18:22:00
Comments: I presently work for a non-profit agency who operates a Youth Outreach
Program. One of the teens became pregnant and made the decision to continue the pregnancy
and have the baby. The baby was born four months ago. When I arrived at work today I heard
that the baby had died from SIDS. I decided to search the WWW to find a support network
for this young mother -- so that when/if she needs support, she will be able to receive
it. Thank you for being. Pamela Parker Dungan The Gloucester Prevention Network 96 Main
Street Gloucester, MA 01930 (508) 281-0311 FAX: (508) 281-0375 |
Name: Barry and KrisAnne
Kinneberg
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-15 10:29:00
Comments: My wife and I were adopting a baby from Korea. He died of SIDS over the
weekend while he was in the care of his foster mother. We are interested in setting up a
memorial in his name. We are also interested in information on SIDS in Korea. Our location
is in St Paul. Thank you |
Name: Alma Lucas
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-15 08:02:00
Comments: I am the support services coordinator for the Pennsylvania SIDS Alliance.
We have a project called Healing Hearts that provides services for parents that have
suffered a misscarriage, stillbirth, or any other infant loss. I'm happy to see that the
SIDS Network is expanding to include all parents that may have suffered the loss of a
child |
Name: Annette
Website:
Referred by: Netscape
From:
Time: 1996-07-15 05:55:00
Comments: I'm glad there's a resource like this |
Name: Sarah &
Gary Lindemann
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-14 18:37:00
Comments: Highland Village, Texas. Our son David died at age 5 months on March 15,
1995. The death was labeled as "undetermined", but the coroner told us it was
most likely SIDS. |
Name: Mary
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-14 16:13:00
Comments: New Jersey |
Name: Alison Moore Smith
Website: Bright Spark Super Learning
Tools
Referred by: Net Search
From:
Time: 1996-07-14 15:46:00
Comments: When our first daughter was two years old, we lost two babies to
miscarriage in 1989. In 1990 we had a healthy daughter, and another daughter was born in
1993. I am now 10 weeks pregnant and have been told that I will lose this baby as well.
Looking for info on possibly preventing future miscarriages. :-) |
Name: Cheri O'Connor
Website:
Referred by: Net Search
From:
Time: 1996-07-14 12:11:00
Comments: Stafford, VA lost daughter to SIDS in 1976; previously associated with
Nebraska Sudden Infant Death Syndrom Foundation |
Name: Jackie Betsko
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-13 20:24:00
Comments: Columbus Ohio. New to www. Lost twin son - 5 weeks old to SIDS in May
1994. Surviving twin son doing great.Interested in hearing from other twin/multiple SIDS
loss parents |
Name: John Rosner
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-13 20:22:00
Comments: Edgewater, MD. My wife is pregnant with a baby that has recently been
diagnosed with gastroschesis. We are waiting for the results of her amniocentesis. The
fetus is also showing signs of a choroid plexus cyst. We are looking for other parents who
have either had children born with gastroschesis, or who have terminated their pregnancy
due to this diagnosis. |
Name: Lisa M. Fournier
Website: Lisa & Jeff's Place
Referred by: Word of Mouth
From:
Time: 1996-07-13 07:23:00
Comments: Columbus, OH I like having a place where I can put Fiona's birth story so
that people all over the world can read it and know her. |
Name: gale jaramillo
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-11 21:08:00
Comments: we have a child (17) who was a sids baby but survived... he is now having
several medical problems. would appreciate any info on anyone having info on
"surviving" sids kids. |
Name: jordanam
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-11 19:09:00
Comments: |
Name: stacey
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-11 15:59:00
Comments: I lost my son August 13,1991, he was born 4 months early. The healing
gets easier every year. In March of 1996 while on my honeymoon with my new husband I found
out I had an ectopic pregnancy, now I am trying to heal from the loss of my second child,
and trying again!! |
Name: Neil Townson
Website:
Referred by: Net Search
From:
Time: 1996-07-11 15:49:00
Comments: Thanks for being out there |
Name: Laura Taylor
Website:
Referred by: NewsGroups
From:
Time: 1996-07-11 14:30:00
Comments: |
Name: Ann Bunch
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-11 13:16:00
Comments: I am a Canadian who is prsently doing a research paper on SIDS. I am
finding the information I am getting to be very helpful, but there is not much on Canadian
stats.My mailing address is Bx.6056 High River,A.B. Canada T1V 1P7.I would like to send my
prayers out to anyone who has suffered such a loss, it can't be easy to deal with. I will
be a new parent this Sept. and I am praying everything will be fine with my baby. |
Name: rishma khimji
Website:
Referred by: Netscape
From:
Time: 1996-07-11 13:12:00
Comments: i just wanted to know more about this syndrome. so i came looking for it
on netscape. i am doing a presentation on it so i wanted to be thoroughly prepared for it.
wonderful site! |
Name: Dana Siegel
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-11 08:41:00
Comments: My son, David, died five years ago at the age of 2 years. I'm still
learning all I can about SIDS. Thanks for such a good reference source! |
Name: Raj Mahajan
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-11 08:25:00
Comments: |
Name: David Barry
Website: none
Referred by: Just Surfed On In!
From:
Time: 1996-07-11 01:54:00
Comments: Hastings Hawkes Bay New Zealand |
Name: Diane Albergo
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-10 21:12:00
Comments: As a SIDS parent, I can't tell you how much it means to have such
dedicated people like yourselves helping to spread the word and disseminate valuable
information. Many thanks to you, in honor of my sweet baby Christopher. |
Name: SUSAN E. LANDRETH
Website:
Referred by: Yahoo!
From:
Time: 1996-07-09 20:41:00
Comments: "CORRECTION ON ZIP CODE" 115 LONGVIEW ROAD WEST COLUMBIA, SC
29169 SENIOR AT CLEMSON UNIVERSITY BS HEALTH SCIENCE IN DECEMBER 1996 WRITING PAPER ON
SIDS. |
Name: SUSAN E. LANDRETH
Website:
Referred by: Yahoo!
From:
Time: 1996-07-09 20:38:00
Comments: 115 LONGVIEW ROAD WEST COLUMBIA, SC 28169 SENIOR AT CLEMSON UNIVERSITY BS
HEALTH SCIENCE IN DECEMBER 1996 WRITING PAPER ON SIDS. |
Name: Kellie Stewart
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-09 14:53:00
Comments: |
Name: Michelle Lewis
Website:
Referred by: Yahoo!
From:
Time: 1996-07-09 10:38:00
Comments: I little angel named Sam was lost on June 29, 1996. He was someone I
watched during the week while his parens were at work. The world lost a wonderful gift. |
Name: CRYSTAL LUND
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-08 13:45:00
Comments: We remember Angela "Our Angel" June 18/95 - Nov 18/95 |
Name: Alice Budfuloski
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-08 13:43:00
Comments: New to WWW. My son died at the age of 2 1/2 yrs. Coroner labeled Sudden
Unexplained Death Syndrome. The closest I could come to a group was SIDS. HAve been active
with The Colorado SIDS Program |
Name: CRYSTAL LUND
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-08 13:38:00
Comments: I'VE FOUND THIS VERY HELPFUL, AND EDUCATIONAL SINCE MY GOOD FRIEND LOST
HER DAUGHTER TO SIDS. AND I JUST RECENTLY HAD A DAUGHTER WHO IS 10 MONTHS OLD. I HAD ALOT
OF QUESTIONS AND THE SIDS NETWORK REALLY HELPED ANSWEAR THEM. |
Name: Rebekah Mitchell
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-08 12:39:00
Comments: I also heard about this on infanlos. I live in Lewisville, Tx. My
baby,Jonathan, was stillborn June24,1995 |
Name: KRIS
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-08 12:10:00
Comments: |
Name: Brandi
Clark...Chrislyn's Mommy
Website: The Clark House
Referred by: Just Surfed On In!
From:
Time: 1996-07-08 11:11:00
Comments: Houston, Texas What can I say to Deb and Chuck other than thank you for
making so many people aware of SIDS and pregnancy and neonatal loss. This site has given
me so much hope....every single story has touched my heart and I have shed many tears for
each and every angel. I feel so grateful to you both Chuck and Deb for doing something
helpful for all of us angel moms and for the world itself. You are both always in my
heart. |
Name: Nancy Tracy
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-08 08:13:00
Comments: |
Name: Debbie Gemmill
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-07 20:18:00
Comments: What a wonderful resource this is. Please know you are with us in your
efforts. |
Name: JANE TOZER
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-07 16:49:00
Comments: 25 PIERCE AVE, LITTLE MOUNTAIN, CALOUNDRA. QUEENSLAND. AUST. 4551 SIDS
PARENT 1985. |
Name: Lisa Barnett
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-07 16:40:00
Comments: I recently had a miscarriage in April and I am presently feeling
psychologically and physically ready to begin trying to conceive. Are there any support
groups for parents who have endured this kind of loss in the Lynbrook,N.Y. area. |
Name: Ned Balzer
Website: Ned
Balzer's PersonalHomepage
Referred by: Just Surfed On In!
From:
Time: 1996-07-07 11:21:00
Comments: This site keeps getting better and better. It is the absolute hub of all
SIDS information on the web. If it's about SIDS, you can find it here. Thanks for
providing this important service. |
Name: NOLA TRAUT
Website:
Referred by: Net Search
From:
Time: 1996-07-07 10:18:00
Comments: |
Name: Mark and Karin Trauman
Website:
Referred by: Yahoo!
From:
Time: 1996-07-07 06:54:00
Comments: We have enjoyed the comfort of reading about others' experiences with
losing children--knowing we're not alone in our grief. We lost our son Adam Christopher at
30 weeks gestation. He was stillborn. We are so very sad, but healing. |
Name: andrea gambill
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-07 03:56:00
Comments: I am the editor and owner of Bereavement magazine and a friend of Debbie
Gemmill. Debbie suggested you might be interested in Bereavement magazine as a resource in
the excellent work you are doing. Please let me know how I can help. |
Name: Ann Lanza
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-06 23:00:00
Comments: My 7 week old daughter just had a near miss SIDS episode. I am looking
for others who have had a similar experience. |
Name: Ron Krahe
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-06 17:10:00
Comments: 8765 State Road Girard, PA 16417 Interested in current research on SIDS
monitors. What technologies are used in commercially available monitors? What direction is
research into new monitors going? |
Name: Aggie
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-06 10:36:00
Comments: I lost a baby at 9wks gestation it was the hardest thing to go through
after my body kind of went thru a stress period, my cycles were messed up and it seem
forever until i got the dr's o.kay to try agian All on top of itall, thru ultrasound we
discovered i had a ovarion cysts and a small fibriod, getting pregnant again took 11mos, I
finally had to qiut worrying and it happened and on March 29th we had our 2nd daughter
(9lbs 3 ozes). There's nothing more gratifying when you can have another child. |
Name: steve/tracy/curtis dale
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-06 00:18:00
Comments: thanks for the great info. |
Name: Debbie Jacks
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-05 19:07:00
Comments: I am interested in your website because I experienced an ectopic
pregnancy in April/May 1996. It was not immediately diagnosed and I went through what I
thought was a miscarriage for THREE WEEKS before undergoing surgery and the emotional
aftermath once again. One day shy of an entire month of this. Glad to know websites like
yours are available. Thank you. |
Name: Tanya Bankart
Website:
Referred by: NewsGroups
From:
Time: 1996-07-05 11:59:00
Comments: I remember Emily. |
Name: Reba Johnson
Website:
Referred by: Net Search
From:
Time: 1996-07-05 11:53:00
Comments: I organize an email loop on AOL for miscarriage supporrt and also host
chats weekly. |
Name: D Albalos
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-05 11:44:00
Comments: |
Name: chris hanson-hughes
Website:
Referred by: Advertisment/Brochure
From:
Time: 1996-07-05 10:23:00
Comments: just became a sids parent on June 5th, Grady James our son was a month
and two days old when he died of sids in a car seat, in our car, in the afternoon (appx.
4:45pm). |
Name:
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-05 03:00:00
Comments: SIDS parent. On the board of the Swedish SIDS Family Association / July
1996 |
Name: Nancy S. Cook
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-04 20:44:00
Comments: I'm an aunt of a SIDS baby....my youngest sister lost her only child. |
Name: Bill Chadwick
"ZOOM" :)
Website: ZOOM - Memorial To Michael - A Page
About Grief
Referred by: Word of Mouth
From:
Time: 1996-07-04 15:17:00
Comments: Your page is incredible!! It brought that warm feeling to my heart and
tears to my eyes. As for your request...I would be honored to have you link to my
page....and I have already put up the link to yours. You have done a beautiful job on your
page and I know that it helps so many people. I had Michael for 21 years....I can't
imagine the pain of losing an infant. As Sister Theresa says (my sig quote) "We can't
do great things in this life...we can only do small things with great love." Thank
you for bringing the world one more "small thing...with great love." Love &
Peace, Bill "ZOOM" :) |
Name: ron & sue
poole
Website:
Referred by: Word of Mouth
From:
Time: 1996-07-04 14:54:00
Comments: we just returned from the international conference in d.c. where we
learned of this page |
Name: James J. Bork Jr.
Website:
Referred by: Net Search
From:
Time: 1996-07-04 11:48:00
Comments: My wife's best friend just lost her 4 month old son to SIDS and I am
looking for resources to assist with the family and friends who are trying to understand
what has happened. We are also looking for a good place to donate funds in the babies
name, any suggestions??? |
Name: James J.
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-04 11:46:00
Comments: |
Name: Randall W Baughn
Website:
Referred by: Just Surfed On In!
From:
Time: 1996-07-03 20:05:00
Comments: My wife (Joanna) and I had twin girls at 31 weeks gestation on January
9th 1996. Julia and Victoria are now fine but it has been the slowest and hardest road we
have ever traveled! Both girls came home on monitors for Apnea and Brady episodes. We now
only use the monitors at night and have not had one alarm! Looking forward to the day we
can cut them loose, but the monitor sure helps you sleep soundly through the night. |
Name: Connie Murdoch
Email: cmurdoch@oln.com
Date: Friday - 21/Jun/96 - 21:43:52
Homepage: http://
Referred from: Net Search
Comments: I don't know if I already signed this before, so just in case
I will do it again. I am the grandma of Abby who died from
SIDS in September of '95. Abby's Mom, Tricia, and I read this site
frequently and it has helped us to deal with a lot of the
things we are going thru since Abby died. The first person
stories have been really comforting for Tricia because it helps
to know others who have been there. I thank you for a great
Internet site.
|
Name: Brandi Clark
Email: chrislyn@nwpros.com
Date: Friday - 21/Jun/96 - 18:09:44
Homepage: The Clark House
Referred from: Just Surfed On In!
Comments: What would we do without this page? It has given
me so much...more than I could ever give back. To
give us the opportunity to talk about our angels is
something that not too many people allow. I have
read every story many times over (including my own!)
and shed tears for each and every lil angel.
|
Name: Judith Cobb, Master Herbalist, Registered Nutritional
Consul
Email: cobbleh@cadvision.com
Date: Friday - 21/Jun/96 - 10:23:18
Homepage: http://
Referred from: Just Surfed On In!
Comments: Great place to visit on the net. Valuable information.
MD's should be made aware of this location! |
Name: Beverley Atkinson
Email: atkinson@voyager.newcom.net
Date: Friday - 21/Jun/96 - 3:51:08
Homepage: http://
Referred from: Net Search
Comments: Our daughter Taylor died of SIDS June 7th,1994. She was
just 6 1/2 months old and we miss her terribly. The SIDS
Network has helped us tremendously with SIDS information,
support and a place to honour our sweet babys' gentle spirit
Thank-you. |
Name: chester thompson
Email: cthomp@worldnet.att.net
Date: Thursday - 20/Jun/96 - 17:45:43
Homepage: sids network
Referred from: Just Surfed On In!
Comments: have a new grand daughter who could have sids, and want the latest
information. |
Name: Chris Albert
Date: Thursday - 20/Jun/96 - 17:01:30
Homepage: http://
Referred from: Just Surfed On In!
Comments: Thanks for giving those of us who have suffered losses a place to go. I
just suffered my 7th loss just 2 days before my 26th birthday and it iis nice to have a
place to visit with others with knowledge on this problem. |
Name: Lori Voth
Email: vothj@baynet.net
Date: Thursday - 20/Jun/96 - 7:05:49
Homepage: The Voth Page
Referred from: Net Search
Comments: I think what you guys are doing is great!! You have helped
so many people. You deserve an award.
You are both so unselfish. You donate so much time to the
SIDSnet, and then you offer your address so that people can
write to you with questions or problems. And you are always
available to provide advice and support!
Your site is GREAT!!! It offers the more information than any
place else I have ever seen. And the info is always up to date,
so that people know they are reading the very latest info
available. Even our public library doesn't provide as much
relevant and up to date info as your site does.
Three cheers to you!!! |
Name: Julie Billington
Email: julieian@ix.netcom.com
Date: Wednesday - 19/Jun/96 - 17:36:37
Homepage: surfing
Referred from: Just Surfed On In!
Comments: My husband and I just lost twins at 20 weeks. Hope to find some answers
and comfort here. |
Name: Dawn Czech
Email: DDARIE@AOL.COM
Date: Tuesday - 18/Jun/96 - 17:44:21
Homepage: http://
Referred from: Just Surfed On In!
Comments: This page is a wonderful comfort and resource for those who
have been touched by the loss of a child or loved one to SIDS.
Everyone should visit this page and tell a friend.
The people have a lot to say and share.
|
Name: Jean Madden
Email: silvjean@aol.com
Date: Tuesday - 18/Jun/96 - 15:09:46
Homepage: http://
Referred from: From LPAGE.COM
Comments: Thanks! |
Name: Jackie Kilmer
Email: Jmom3@AOL.com
Date: Tuesday - 18/Jun/96 - 14:58:59
Homepage: http://
Referred from: Word of Mouth
Comments: Jody Kay Kilmer 12/16/94-3/5/95 |
Name: Theresa R. Hartley
Email: hartley@ro.com
Date: Tuesday - 18/Jun/96 - 14:10:43
Homepage: http://
Referred from: Just Surfed On In!
Comments: Found you via Parent'sPlace. I am always interested in
good resources to direct friends towards. This is one I
will remember. |
Name: Deanna M. Deaven
Email: Deanna.Deaven@FMR.com
Date: Tuesday - 18/Jun/96 - 13:07:51
Homepage: http://
Referred from: Yahoo!
Comments: I found this page about a month ago. My son Andrew was born on August 17,
1993, and died on February 8, 1994. Reading about and talking to others who have
experienced the same loss is very therapeutic. |
Name: Tina Worley
Email: WORLEYT@TEN-NASH.TEN.K12.TN.US
Date: Tuesday - 18/Jun/96 - 12:00:31
Homepage: http://
Referred from: From LPAGE.COM
Comments: My beautiful daughter, Janey Lou, was 6 months and 3 weeks old when she
died of SIDS on April 30, 1995. I laid her down for the night, 10 minutes later went to
check on her and she was dead. This is a non-ending nightmare |
Name: michael swim
Email: mswim@tenet.edu
Date: Tuesday - 18/Jun/96 - 10:10:48
Homepage: http://
Referred from: Just Surfed On In!
Comments:
terrific |
Name: Susan Sigler
Email: sigler@hoho.org
Date: Tuesday - 18/Jun/96 - 9:45:25
Homepage: http://
Referred from: Just Surfed On In!
Comments: My son Benjamin William died of SIDS on June 1, 1995,
at age 4 1/2 months. He was born January 11, 1995.
We still think about him every day. Thanks for this
site, especially for those experiencing a new loss. |
Name: kathy cupo
Email: kcupo@prudential.com
Date: Tuesday - 18/Jun/96 - 4:34:12
Homepage: prudential
Referred from: Just Surfed On In!
Comments: My son Nicholas died when he was 13 days old. He was born with Trisomy
13....
|
Name: Helene Weston-Davy
Email: hwestondavy@tafe.nsw.edu.ae
Date: Tuesday - 18/Jun/96 - 3:05:20
Homepage: http://
Referred from: Net Search
Comments: I look at your page once a fortnight.
My baby son died two hours after birth.
One day, when I feel the time is right for
me I will send you my son's story.
Helene Mother to Kieran b/d 29 March 1995
|
Name: Erwin Cruz
Email: erwinc@bgo.cyberspace.com.ph
Date: Monday - 17/Jun/96 - 23:06:08
Homepage: My
Home Page
Referred from: Net Search
Comments: We had a topic on SIDS in our school, and it has intrigued me so much.
Infants dying without
an explanation is something we should put concern to. It was
really nice of you to devote your time on making this site in
order to enable researches regarding SIDS. |
Name: Julie Khorsandi
Email: julyar@value.net
Date: Monday - 17/Jun/96 - 22:11:36
Homepage: none
Referred from: Net Search
Comments: In the memory of my son Angel born 10/7/94. |
|
Now you can