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SIDS: Reducing The Risk

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the video SIDS: Reducing The Risk brings together SIDS policy makers, scientists and physicians in a unique 27 minute educational documentary. Risk reduction education is currently our most powerful weapon in the war on SIDS. This video is a wonderful tool to bring you up-to-date on all the current known risk factors for SIDS.

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Name: Erin Anderson
Website:
Referred by: Just Surfed On In!
From: Ohio
Time: 1998-05-31 21:56:10
Comments: SIDS is a terrible thing that happens to innocent victims. My best friend who was only 16 had a baby and at 3 months it dies of SIDS. I think that there must be some definate answers to why this happens. I am on here because of a report I choose, so I could do a little research on the topic

Name: Chris Adkins
Website:
Referred by: Net Search
From: Northern Kentucky
Time: 1998-05-30 20:48:53
Comments: I am now 13. I was high-risk for SIDS as an ininfant and almost died many times. It sadenes me to know that many were kids weren't as lucky as me and won;t live to be an adult or even a teenager.

Name: Joanne Fraser
Website:
Referred by: Word of Mouth
From: Canada
Time: 1998-05-30 11:04:23
Comments: Thanks for the webpage. I am a sids parent of a two and a half year old. Bradlee died on Christmas day 1996 and these pages really help.

Name: Lisa L. Biakanja
Website:
Referred by: Word of Mouth
From: CALIFORNIA
Time: 1998-05-30 00:34:59
Comments: I am a SIDS parent and provide peer support to parents in the Orange County area. I am interested in corresponding with any parents in similar situation. Also, it was my daughter, Kristy, 16th birthday this last week and was really hard - milestones still hurt!

Name: Stacey Thur
Website:
Referred by: Just Surfed On In!
From: Revelstoke B.C., Canada
Time: 1998-05-29 19:11:30
Comments: My son Kristian Jaymes died February 17, 1995 at the age of 23 months. He would be 5 now.

Name: Laura Contreras
Website:
Referred by: Just Surfed On In!
From: Texas
Time: 1998-05-29 16:22:32
Comments: Thank you to those of you who have had the insight to design a place for us to come and get information and support Laura

Name: Linda Kiley
Website:
Referred by: Net Search
From: East Greenbush, NY
Time: 1998-05-29 12:40:22
Comments: On May 6th of this year, our precious baby was taken from us. Danny was our first child, he was 8 months and 4 days old. He was the light of our lives. Our life will never again be the same. I searched all over the internet for information on this moster called SIDS and this page has helped in knowing people do and can learn to live with this pain.

Name: John and Diana Sanchez
Website:
Referred by: Net Search
From: Fort Riley Kansas
Time: 1998-05-28 21:42:42
Comments: We lost a precise little girl at 26 weeks and still wonder why

Name: Leah Hunter
Website:
Referred by: Net Search
From: Middlesboro, KY
Time: 1998-05-28 16:47:14
Comments: After 14 years it is still hard.

Name: Nancy Mathewson
Website:
Referred by: Word of Mouth
From: Minnesota
Time: 1998-05-28 00:30:55
Comments: The word of mouth is actually the "SIDS SURVIVAL GUIDE". Its through those parents speaking out in writing that I found out about this web site.

Name: Steve Jones
Website:
Referred by: Just Surfed On In!
From: Portland, OR
Time: 1998-05-27 18:23:17
Comments: This is just the type of resource my wife and I have been looking for!

Name: Constancio C. Alvarez
Website:
Referred by: Just Surfed On In!
From: Japan
Time: 1998-05-27 07:29:40
Comments: I need to know more about SIDS

Name: Jennfer Rosson
Website:
Referred by: Just Surfed On In!
From: Grottoes, Virginia
Time: 1998-05-26 21:20:42
Comments: I had a baby cousin who was almost a year old and he died of SIDS. His name was Dalton. He will always be in our hearts!!!

Name: Eric Chau
Website:
Referred by: Just Surfed On In!
From:
Time: 1998-05-26 20:02:15
Comments: Great site.

Name: Leslie
Website:
Referred by: Net Search
From: Connecticut (presently living in Ecuador)
Time: 1998-05-26 17:05:47
Comments: I recently had a miscarriage at 12 weeks. Living far away from home, family, friends and any semblance of a "support group" has made this loss that much more difficult for me. I am happy to have found support and information here through the internet.

Name: DEBBIE & CHAD BRADFORD
Website:
Referred by: Just Surfed On In!
From: CARLSBAD, NEW MEXICO
Time: 1998-05-26 16:33:29
Comments: WE LOST OUR DAUGHTER, TABITHA RENAYE BRADFORD TO SIDS LAST YEAR. BORN JUNE 27, 1997, DIED OCTOBER 17, 1997. WE MISS HER DEARLY. OUR HEARTS TO OUT TO ANYONE ELSE WHO HAS EXPERIENCED THE LOSS OF A CHILD.

Name: Mrs Laura Stanton
Website:
Referred by: From LinkExchange
From: Gulf Shores Alabama
Time: 1998-05-26 16:17:27
Comments: Thank you for the information. I have a 5 month old baby boy.

Name: Milen Nenov
Website:
Referred by: Just Surfed On In!
From: Bulgaria
Time: 1998-05-26 13:43:12
Comments: I'm student from Technical University of Varna - BULGARIA

Name: Joey Bose
Website:
Referred by: Just Surfed On In!
From: Stamford, Nebraska
Time: 1998-05-26 08:18:49
Comments: My first son, Christian Jay "CJ", was born on June 7, 1994 and died of sids on Sept. 7, 1994.Since then we have been blessed with twins, a girl who is named after her big brother, Kristyn Jae and a boy. Brenden Michael.

Name: Sonja
Website:
Referred by: Net Search
From:
Time: 1998-05-26 07:06:09
Comments: I would just like to congratulate all the people that work to prevent sids all over the world. I am a Belgian Student and study nursing. I did a paper on the prevention of S.I.D.S. and am now looking for new information about the guidance given to parents. If you can help me, please contact me.

Name: NiniaNicole
Website:
Referred by: Net Search
From: Colorado
Time: 1998-05-26 05:35:28
Comments: Before I was born my brother died I share yoour pain and hope that one day I will find a way to prevent this from happening

Name: Michelle
Website:
Referred by: From LinkExchange
From: IL
Time: 1998-05-25 11:12:56
Comments: I am very glad that there is this page available! Thank you all!!!

Name: Christian Popow
Website:
Referred by: NewsGroups
From: Austria
Time: 1998-05-25 09:00:04
Comments: I like your homepage very much and will add it to my favourite web pages!

Name: shayna
Website:
Referred by: Net Search
From: oregon
Time: 1998-05-24 10:29:19
Comments: i am doing a research on SIDS in my class at school and find this page very helpful and would like to think all of you who put up this page. thanks!

Name: Angie Miller
Website: in development
Referred by: Just Surfed On In!
From: Vice President of Iowa SIDS Alliance
Time: 1998-05-24 02:50:28
Comments: Iowa is developing its own web-page for local info, wanted to get some input from other sites. It's great.

Name: corrie
Website:
Referred by: Net Search
From: ontario
Time: 1998-05-23 14:28:38
Comments: i'm doing a project on SIDS please send me some information

Name: diane bekker
Website:
Referred by: Just Surfed On In!
From: montana
Time: 1998-05-23 14:21:38
Comments: It has been 11 months since we lost our granddaughter. She was a twin and the oldest one. She was 4 months old. It is still very hard.

Name: Mike and Charla Landrum
Website:
Referred by: Word of Mouth
From: Spring, Tx
Time: 1998-05-22 23:22:08
Comments: My husband and I signed the guestbook on April 30,1998. We have changed our e-mail and would like to hear from anyone that wants to talk.

Name: Pam Dougherty
Website:
Referred by: Word of Mouth
From: Plymouth, MN
Time: 1998-05-22 16:24:51
Comments: I have friends that lost their precious little girl to SIDS last summer. They are sponsoring a walk in her honor to raise money and awareness for SIDS. I wanted to find out some more information, so I'm checking out your website. I've been very touched by the stories I've seen in the guest book. I'll hold my two little girls a little longer each night as I think of all of you.

Name: Liz Richardson
Website:
Referred by: Net Search
From: Derbyshire, England
Time: 1998-05-22 08:56:39
Comments: I work with families who have suffered sudden infant deaths and find the information on the SIDS site invaluable. The people I work with do not have access to computers or the net so I act as the information gatherer and disseminator. I am currently assisting our recently formed support group to obtain a computer so they can have direct contact with parents abroad. My heartfelt sympathies go to all your parents who have lost babies and infants to SIDS. I will be happy to pass on any tips you may have for our suppoprt group members who are aiming to fund raise to buy equipment for our CONI (Care Of the Next Infant scheme) which I coordinate:it is available to all parents who have had a SIDS loss and can supply them with monitoring equipment as well as increased support from health professionals.

Name: Christina Mielke
Website:
Referred by: Just Surfed On In!
From: Stevensville, MD
Time: 1998-05-22 08:30:53
Comments: My daughter Halley died of SIDS in February of 1993 at 6 1/2 months of age. Even though it has been 5 years since she died I still find that coming to this site is a comfort, as I know that I am not alone. Thanks for creating this!!!

Name: Henrietta Jahns
Website:
Referred by: Just Surfed On In!
From:
Time: 1998-05-22 07:59:58
Comments: My son died of sids in 1971 It's so sad that our goverment does not find this a real problem. I really thought that 26 yrs they would be on the band wagon trying hard to find a real cure.Our children are our future and we must protect them,one of these babies could have the answer to world peace or nuclaur waste.Where is our goverment when you need them?

Name: Wendy White
Website: Angels Of The Net
Referred by: Just Surfed On In!
From: Florida
Time: 1998-05-21 12:32:32
Comments: This is a wonderful source for information.I have placed a link to this site on my webring page.



Thanks,
Wendy White

Name: Colleen Lembo
Website:
Referred by: Just Surfed On In!
From: New Jersey
Time: 1998-05-21 12:26:23
Comments: My deepest sympathies to the parents of Ryan Michael Sweeny. My husband and i lost our 4 month old daughter, Charlotte Rose on March 17,1998. Rory was there for us and we are here if you need us. It helps to talk to someone going through the same loss. God Bless you and your litte angel in Heaven.

Name: abier
Website: rememberance to jessica
Referred by: From LinkExchange
From: canada
Time: 1998-05-21 11:40:52
Comments: im really glad there are places to turn when needing answers or just to talk to some one. my daughter jessica died from sids in 1991.

Name: Renee Wood
Website:
Referred by: Just Surfed On In!
From: Kentucky
Time: 1998-05-20 23:38:52
Comments: My son Randy died of SIDS at the age of 3mths 7days on may 12 1988

Name: Dawn Mason
Website:
Referred by: Just Surfed On In!
From: California
Time: 1998-05-20 22:21:22
Comments: I am very compeled by your web site. I have read most of the first person pages, and feel that i can relate to some of these people who have been through the loss of a child. I found out that i was pregnant in May of 1997, I was so happy. My husband and I were trying to have another child for our daughter to grow up with. when I was 15 weeks i began to bleed, so i went to the doctor, i was so scared I hadn't yet felt my child move, so I wanted to find out if everything was ok. I heard my babys heartbeat, which reassured me that everything was alright. I was fine up until 28 weeks, when i started going into preterm labor, the doctors put me on all kinds of medications. I went in on Jan.24,1998 in labor 2 weeks before my due date, the baby heartbeat was 175-190 beats/min. The nurses began to give me oxegen, and an iv with fluids. The doctor came in and dicided to break my water, and started me on pectosin. At 1:33 p.m Jan. 24th, i delivered a beautiful baby boy, he was so perfect, 7lbs. 10 ozs. and 20 1/2 in. long, we were doing so good they let me go home the next day. Everything was wonderful, my daughter liked helping with her little brother, and my husband was just glowing. We were all happy until the morning of Jan. 27th, I woke up with this felling that something wasn't right, my maternal instinct was right, my son wasn't breathing, and had froth coming from his nose. All I coould do was yell at my husband to wake up, he did, and just started doing cpr, I called 911 and they sent out the ambulance, the fire rescue truck came in and took over for my husband, when the ambulance got there they took him straight to the hospital, so my husband and i followed. When we got there they wouldn't let us go in, so we had to sit and waight. My certified nurse midwife came in to see how everything was. She finally came out and told us that he didn't make it. They worked on hime for 1hr or longer. We waited for 5 weeks for the results of the microscopic test and autopsy came back with no more than we had already known. The final ruleing was that my son had passed away from SIDS. I wasn't sure what that was, so I got on line to find out what it was, thats when i found your sight. Every once in a while i come back to read what other people have said. Its been 3 1/2 mo. I became pregnant again and was so happy to have another child. Until May 14th, my life was back to the way it was when my son passed away. I had a miscarriage. I'm not sure why, it just happened, i think my body wasn't ready to go through with a pregnancy so soon. I thank you for having a web site, because i feel that people aren't aware of these thing happening. You've done a great job thank you for your time, Dawn Mason

Name: Melissa Kauma
Website:
Referred by: Just Surfed On In!
From: Minnesota
Time: 1998-05-20 19:09:31
Comments: I'm really amazed at the page you have dedicated to SIDS. Someone I used to live across the street from lost their daughter to SIDS a long time ago but I never relalized it was as common as it is. I probabally never would have found out either if it wasn't a part of a school project but I am glad that there are places where people can find information about things like this.

Name: mogilner
Website:
Referred by: Advertisment/Brochure
From: Israel
Time: 1998-05-20 17:33:25
Comments: Iam interested in up to date theories to explain the cause of suden death of infants. I would like to have feedback from the Sids network members.

Name: Al Blackmore
Website:
Referred by: Just Surfed On In!
From: Toronto
Time: 1998-05-20 10:46:36
Comments: We recently lost our Grandson Tylor to SIDS and are looking for answers as to why

Name: Samantha
Website:
Referred by: Just Surfed On In!
From: Toronto, Canada
Time: 1998-05-20 02:24:57
Comments: I lost my son Tyler, age 7 weeks, to SIDS in Feb. of 1994. Although I am still having many problems accepting and understanding his death, I have found this site to be very helpful. It's good to know that you are not alone...

Name: Lisa Greene
Website:
Referred by: Just Surfed On In!
From: Proctor Minnesota
Time: 1998-05-20 00:40:37
Comments: My daughter died from sids .tonight is a tough one.Jessica's 1st anniversary is tommorow.I have made it through the 1st birthday,I"am reaching another mile stone.Ifeel alone ,I keep on thinking of the pain I went through last year,Ifeel the numbness all over again.Itry to tell myself Ican make and I will.I wonder what she would look like if she was still with us,I didnt have her long,she was 19 days old.I do have alot of support,from my family and my church,but they try to help ,but when you go through this as a parent it is the worst expierence imanageable.People need to be alittle more aware,friends and family when anniversaries arise.Ikow they try to remember,when they forgert it hurts. good-bye my sweet angel ,mommy loves you and so does daddy and your brother&sister GOd bless all of our angels Email us

Name: renee freeman
Website:
Referred by: Just Surfed On In!
From: lauderhill
Time: 1998-05-19 20:03:44
Comments: I AM UNDER INVESTIGATION FOR SHAKEN MY BABY. I KNOW I DID NOT CAUSE AN INJURY TO MY CHILD BUT NOONE WITHIN THE COURT SYSTEM, OR CHILD PROTECTION TEAM WANTS TO LISTEN. I AHVE NO PRIOR HISTORY WITH CHILD ABUSR TO ARREST RECORD. I AM A EXCELLENT MOTHER TO MY CHILDREN AND DON'T UNDERSTAND HOW THIS IS HAPPENING TO MY FAMILY . I UNDERSTAND THAT THERE ARE PEOPLE OUT THERE WHO DO HURT THEIR CHILDREN BUT I'M NOT SUCH A PERSON. AT THIS TIME MY CHILDREN HAVE BEEN PLACED IN SHELTER, AND MY FMAILY'S PETITION FOR CUSTODY HAD BEEN DENIED. I KNOW THAT WHEN I GO TO TRIAL THE TRUTH WILL COME OUT BUT IN THE MEAN TIME MY CHILDREN ARE BEING DENIED A LOVING AND NUTRING FAMLIY UNIT. I DO TRULY FEEL SORRY FOR THOSE FAMILIES WHOSE CHILDREN HAVE BEEN TOUCHED BY THIS TERRIBLE THING CALLED SBS. BUT I THINK THEIR IS A SERIOUS RUSH TO JUDGEMENT IN THESES CASES, AND THE CHILDREN OR THE ONES WHO SUFFER

Name: Pat Dillman
Website:
Referred by: From www.GuestWorld.com
From: New Jersey
Time: 1998-05-19 19:15:14
Comments: Condolences to the family of Ryan Michael Sweeny. You are in my family's thoughts and prayers. We lost my niece Charlotte Rose to SIDS in March and Rory was there for my family..

Name: Denise
Website:
Referred by: Just Surfed On In!
From: Federal Way Washington
Time: 1998-05-19 14:57:28
Comments: Thank you for the information. My Daughter is pregnate and her and her babys dad have a high risk for SIDs in the new baby with the Dad already having one die of SIDs. We both found the information very useful

Name: Cheryl Isnor
Website:
Referred by: Just Surfed On In!
From: New Brunswick, Canada
Time: 1998-05-19 13:39:52
Comments: I lost my twin babies 5 months into my pregnancy. It happened the day of my first ultrasound. We found out that they were connected at the chest and died 3 months earlier. They induced labor on me and I delivered. They were boys. I am still suffering at there loss

Name: Judy
Website:
Referred by: Net Search
From: Connecticut
Time: 1998-05-19 13:23:00
Comments: I have had 8 miscarriages. I am now pregnant again. I can only hope and pray. Visit this site regularly.

Name: CONNIE SWANG
Website:
Referred by: Just Surfed On In!
From: TENNESSEE
Time: 1998-05-19 12:32:45
Comments: OUR SON STEPHEN BEDFORD SWANG WAS #2 OF A SET OF TRIPLETS BORN AUG.24,1995 AND DIED OF SIDS ON NOV.26,1995. HE IS MISSED DEEPLY BY HIS MOM AND DAD AND TRIPLET SISTERS BREANNA & BRETTE.

Name: Karen Russell
Website:
Referred by: Just Surfed On In!
From: Arizona
Time: 1998-05-19 04:44:43
Comments: Thanks to all for their stories. I now feel like I am not alone in this time of sorrow. Thanks again for this page.

Name: Cyndee DeVito
Website: disney
Referred by: Just Surfed On In!
From: Henderson, Nv.
Time: 1998-05-19 02:12:34
Comments: I am the mother of a son who died in my arms at home from Hypoplatstic Left Heart, after living 3 days. Conall was born on Jan. 7, 1993, and died on Jan. 10, 1993. I find comfort in reading other stories of parents, and knowing that my feelings of saddness and emptiness are not alone. After 5 years I know that my son will never be forgotten and that his brief life will always effect the way that I will continue to live on.

Name: Cyndee DeVito
Website: disney
Referred by: Just Surfed On In!
From: Henderson, Nv.
Time: 1998-05-19 02:12:20
Comments: I am the mother of a son who died in my arms at home from Hypoplatstic Left Heart, after living 3 days. Conall was born on Jan. 7, 1993, and died on Jan. 10, 1993. I find comfort in reading other stories of parents, and knowing that my feelings of saddness and emptiness are not alone. After 5 years I know that my son will never be forgotten and that his brief life will always effect the way that I will continue to live on.

Name: Dr. David Goodman
Website: David Goodman, Ph.D, Psychologist & Associates
Referred by: Word of Mouth
From: St. Charles, Illinois
Time: 1998-05-18 15:50:49
Comments: I am a practicing psychologist in St. Charles, Illinois and see patients who have lost children through SIDS. I wanted to use your page as a link on my web page to help those families who would like further information.

Name: Kimberly Chervenak
Website:
Referred by: Just Surfed On In!
From:
Time: 1998-05-18 13:31:50
Comments: Researched SIDS in college. Currently pregnant with my second child. I have heard conflicting accounts of how a child is to sleep -- back or side. With my first child it was on the side -- is this still correct?

Name: Lane Haugen
Website:
Referred by: Net Search
From: South Dakota
Time: 1998-05-17 10:56:23
Comments: Thank you very much for supplying me with the information that was needed do complete a paper of mine about SIDS!

Name: suzanne
Website:
Referred by: Just Surfed On In!
From: holland/uk
Time: 1998-05-17 08:11:13
Comments: well designed and informative site :0)

Name: katy
Website:
Referred by: Word of Mouth
From: brisbane,australia
Time: 1998-05-17 06:55:00
Comments: I lost my first child to sids when he was 6 weeks old(Kristian Jacob Knight 14-10-96 - 24-11-96) I have since had another child (her name is Indy and she is almost 6 months old)Indy has helped to ease alot of our pain and is of course a beautiful way to remember what joy Kristian bought to us in his short life. It has been 18 months since Kristian moved on and I feel that I have come to as much of an acceptance as I will ever have. 18 months ago this very website and everyone's stories helped me. Infact,it helped me more that sids support groups, the australian sids foundation and friends and family. For those of you who have taken the time to show your concern and share your story- thank you. I am here to help-please email me if you want to talk about your loss,apnea monitors or subsequent children. Katy Knight, Australia

Name: Leonard J Bazinet
Website:
Referred by: Just Surfed On In!
From: ArlingtonTexas
Time: 1998-05-16 18:42:41
Comments: Thank you very much for a most imformative site .

Name: Koren Purdom
Website:
Referred by: Net Search
From:
Time: 1998-05-15 22:29:30
Comments: I'm doing a term paper on SIDS and this site really helped! Thanks!!!

Name: Crystal Henderson
Website:
Referred by: Just Surfed On In!
From: Toronto, Ontario, Canada
Time: 1998-05-15 16:27:20
Comments: I lost my daugher Erin, a few years back at the age of 7 weeks. I was in complete confusion as to how and why it happened. Being from northern Ontario, there were no resources or people to speak with...I searched for a site like this and somehow it made me feel relieved that just maybe, her death was not my fault. To this day, it still hurts to talk or write about her. I wish this didn't have to happen to parents of the world, but I am thankful for those people who have contributed to this site. It has soothed some of the pain. Thank you.

Name: Emelia Egeme-Ari
Website: none
Referred by: Just Surfed On In!
From: Ghana - West Africa
Time: 1998-05-15 07:31:37
Comments: